Thursday, May 14, 2015

And So It Begins...

Today is the first day of the rest of our lives... with Humira, that is.

We received word late last week that our insurance company had approved the Humira injections for Brandon! Hallelujah! Praise the Lord!

Just to recap, or in case you missed it, these injections cost $6,000 to start, and the monthly maintenance dosage cost is $2,000, so for insurance to approve this and help with the cost is amazing and SO very very needed!

For the last 2 weeks, we have prayed diligently over Brandon and the decisions we've needed to make regarding this medication. As with any medication, there are side effects. We are primarily concerned about the side effect of Lymphoma and any side effects with regards to fertility in the future. Let me state right now, NO we are not trying to get pregnant right now. However, we have decided that we may want to try for a third child at some point in the future (the distant future as Brandon calls it ;) ). With that being said, those are serious concerns for us. Brandon's doctor immediately called out the fact that there is an increased chance that he could develop Lymphoma, which is a type of cancer. The "c" word scares me, and I really don't want to even think about this part of the whole deal. (If I ignore it, it will go away, right?!) We also don't know how the Humira could affect our trying to conceive another baby one day, or if there could be birth defects that result. The other factor to all of this is that his body could potentially not respond to the medication and we would be back at square one.

Despite these concerns, Brandon has felt a peace about beginning this medication. He is trusting in the wisdom of his medical team and that the Lord holds his future. We may not know what tomorrow looks like, but we know with certainty that the Lord our God is the perfect author of our story. He has written the beautiful pages of our lives and continues to create a most complicated and precious storyline that is one we hope to look back on and be proud of.

Today we received 6 pens of Humira on dry ice on our front doorstep. We were both giddy and a little sweaty-palmed as we opened the contents of what feels like the fate of our future. So today, we decide to document our experience and show the very real side of what life will be like in this home. Brandon will begin his onboarding of Humira with 4 injections today, and will continue with 2 more in 2 weeks and one injection every 2 weeks for the rest of his life. If that sounds as scary as it feels while I'm typing it, it is. While we may view Humira as our lifeline to normalcy and a life without pain and discomfort it is only because it is the object of our attention, and we know that our true hope is in Christ Jesus and that He holds us and loves us through every step.

Enjoy our very first VLOG (that would be a VIDEO blog :) and just a word of caution, it may not be suitable if you're squeamish around needles!):

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